The results of this survey will be available to the public. Please visit the OIFE website for updates, or if you would like to be notified when results are published, please sign up to our mailing list

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The IMPACT Survey is a joint research project between the Osteogenesis Imperfecta Foundation (OIF), the umbrella organisation Osteogenesis Imperfecta Federation Europe (OIFE) and the pharmaceutical company Mereo BioPharma.

The IMPACT Survey is an international survey aimed at capturing and quantifying the real impact OI has on people’s lives to enable better diagnosis, treatment and care, and to support availability of potential future treatments for OI.

Click here for more information 

We thank all volunteers that have supported the development, translation and promotion of the survey!

The survey is now online and open until the end of September 2021