The results of this survey will be available to the public. Please visit the OIFE website for updates, or if you would like to be notified when results are published, please sign up to our mailing list


Thank you for signing up!

The survey results will be used to support future collaborative work on better diagnosis, treatment and care and the availability of potential future treatments for OI.

The IMPACT Survey is a joint research project between the Osteogenesis Imperfecta Foundation (OIF), the umbrella organisation Osteogenesis Imperfecta Federation Europe (OIFE) and the pharmaceutical company Mereo BioPharma.

The IMPACT survey is now closed!

We thank all volunteers that have supported the development, translation and promotion of the survey, and particularly the OIFE and OIF leadership, teams and member organisations, without whom it would not have been possible.

We are grateful to all participants for taking the time to respond to the survey.

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